I almost met my demise on Tuesday. I have this need for speed and I LOVE going down ramps and hills. Well, I met the first hill I couldn't stop on. It was the drive way up to the parking lot which met it lead into a street. Not a busy one, but with cars nonetheless. I'm at the top and I say daddy watch for cars. I'm such a big kid sometimes. He's like ok - no ones coming. I didn't think the hill was as steep as it was, but I was motoring and next thing I hear dad say is CAR! STOP! CAR!!! Well, I couldn't stop as much as I tried to. The rubber on my wheels was burning my hands and next thing I know is I'm flying into the middle of the street with a car just a couple of feet from hitting me. He wasn't going that fast, but he had to stop quickly and I probably gave that poor old man a heart attack and it scared the crap out of my dad. I couldn't stop until I was in the opposite lane - so I went across 4 lanes roughly. I still had fun going down it. Dad made me take the walk way the rest of the trip. He was shaking his head at me and said no more. I never want to see that again!! I thought I would be picking you up and calling an ambulance. Talk about a quick way to get to the front door. At least he could joke about it a little bit.
It really didn't look all that steep and dad even thought I would be able to stop on it. I misjudged it. That's my fault. The daredevil in me sure likes the speed though. I need to find a safer way of getting the wind to rush through my hair. I won't attempt that again unless there is a looooooong sidewalk at the end for me to cruise down. I'm safe and I know it could have been a lot worse.
I would never ever want my dad to wittness something like that. He was shaken up over that event to say the least - I could tell so I will be more careful of when I am launching myself down a hill no matter where I am at.
Thursday, July 5, 2007
Sunday, July 1, 2007
I'm Cured...
...well technically not, but sorta. I'll explain.
I had my four-month Lupus check up on Thursday and all my lab work that I had done on Wednesday came back perfect. Last months lab results my platelets and liver counts were off a little, but when I had them rechecked the following week they were normal so most likely a fluke/off test.
Dr. Fanciullo and I discussed my Cell Cept dose and I told him they do make the drug in 250mg tablets so if he wants to try going down a little more than we could. I have been at 1000mg for over two years and he said we will check my blood work next month and if everything is ok we will go down to 500mg and not even worry with getting 250mg tablets and dropping down to 750mg. He said if all goes well with that I will soon be off it. That shocked me and scares me a little. I have been on it for so long that I don't want to rock the boat. The drug is my cushion barrier to stay off that nasty Predisone. I never thought I would be off it totally ever. I will still continue to take Plaquenil as it doesn't have the side effects and it will keep the Lupus calm and worse case scenario by going off Cell Cept in the future is that my monthly blood work would show signs and I would just go back on it. It beats going back on Prednisone right away that's for sure.
He checked my hands for the red bumpys (my medical term) since I am his only patient that has that symptom when the Lupus is active and checked my lungs. After that he said it looks like you are in perfect health. With that I announced " I'm Cured!!" and Dr. Fanciullo shook his head yes. That surprised me, but I know that the Lupus is still there - it is just very calm and undetectable. Going out the door I was blowing a bubble with my gum and he goes you have been in remission for two years now and I held up three fingers and he goes, well who's counting and I pointed to me.
I am counting every year that I stay in remission as another year that I don't have to worry about - nasty hospital stays, is my blood count high enough for me to get out of bed today, the fight with pressure sores, icky drugs that make my hair fall out and make me gain a ton of weight, among a million other nasty things that happen when the Lupus is active. So three years IS a big difference over two and you bet I will count! I spent two years in bed from being sick so to have another extra year over that – it's huge and I hope to continue to add on more years.
He didn't even bring up Actonel. I think he is sick of butting heads with me on it. I did forget the info I printed on it that said it wouldn't do much good for somone with SCI, but did tell him that an FES bike would be beneficial for osteoporosis and asked if they could get one. I said they were 17 grand and he said ask your rehab people at Sanford to get one - he just donanted 400 million, they can afford it. It's a thought.
YIPPEE FOR REMISSION!!!
I had my four-month Lupus check up on Thursday and all my lab work that I had done on Wednesday came back perfect. Last months lab results my platelets and liver counts were off a little, but when I had them rechecked the following week they were normal so most likely a fluke/off test.
Dr. Fanciullo and I discussed my Cell Cept dose and I told him they do make the drug in 250mg tablets so if he wants to try going down a little more than we could. I have been at 1000mg for over two years and he said we will check my blood work next month and if everything is ok we will go down to 500mg and not even worry with getting 250mg tablets and dropping down to 750mg. He said if all goes well with that I will soon be off it. That shocked me and scares me a little. I have been on it for so long that I don't want to rock the boat. The drug is my cushion barrier to stay off that nasty Predisone. I never thought I would be off it totally ever. I will still continue to take Plaquenil as it doesn't have the side effects and it will keep the Lupus calm and worse case scenario by going off Cell Cept in the future is that my monthly blood work would show signs and I would just go back on it. It beats going back on Prednisone right away that's for sure.
He checked my hands for the red bumpys (my medical term) since I am his only patient that has that symptom when the Lupus is active and checked my lungs. After that he said it looks like you are in perfect health. With that I announced " I'm Cured!!" and Dr. Fanciullo shook his head yes. That surprised me, but I know that the Lupus is still there - it is just very calm and undetectable. Going out the door I was blowing a bubble with my gum and he goes you have been in remission for two years now and I held up three fingers and he goes, well who's counting and I pointed to me.
I am counting every year that I stay in remission as another year that I don't have to worry about - nasty hospital stays, is my blood count high enough for me to get out of bed today, the fight with pressure sores, icky drugs that make my hair fall out and make me gain a ton of weight, among a million other nasty things that happen when the Lupus is active. So three years IS a big difference over two and you bet I will count! I spent two years in bed from being sick so to have another extra year over that – it's huge and I hope to continue to add on more years.
He didn't even bring up Actonel. I think he is sick of butting heads with me on it. I did forget the info I printed on it that said it wouldn't do much good for somone with SCI, but did tell him that an FES bike would be beneficial for osteoporosis and asked if they could get one. I said they were 17 grand and he said ask your rehab people at Sanford to get one - he just donanted 400 million, they can afford it. It's a thought.
YIPPEE FOR REMISSION!!!
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